My name is Srinivasan KE. I have a 1 year old child Ganesh, who has been diagnosed to have Congenital Dyserythropoietic Anemia which is a rare inherited condition that does not allow proper development of red blood cells in the body. He was born in a critical condition with “hydropsfetalis” because of this problem and survived after a prolonged stay in the Neonatal Intensive Care Unit of Sundaram Medical Foundation, Chennai.
He is now under the care of Dr Revathy Raj, Apollo Hospitals, Chennai and Dr Vikram Mathew, Christian Medical College, Vellore – both eminent hematologists in the country.
He is dependent for life on frequent blood transfusions and we have been told that the only definitive treatment for this condition is a Bone Marrow Transplantation that is to be done at CMC, Vellore shortly. The subsidised expenses towards the BMT procedure will be in excess of INR 25 lakhs (INR 2.5 million).
I already lost my first child at birth, possibly due to the same illness. The only way to save Ganesh is for him to undergo the BMT. I have already spent about 10 lakhs INR on diagnosis and treatment so far and it is impossible for me to raise this money needed for the urgent BMT at short notice. My insurance companies have rejected my claim on the basis of the condition being present at birth.
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I request all friends, well-wishers and philanthropists to support us in this time of need and help us save our child. Even the smallest donation could make a difference to our child.